10 Year
Old Ryan Markland from Livonia MI suffers from Friedreich's
Ataxia Hyper-trophic Cardiomyopathy which
is a form of Muscular Dystrophy. Ryan is progressively
getting worse and has numerous doctor visits this month and
next to determine the best solution, which will probably
include placing a rod along side his back to aid his spine,
in the next few months. Ryan is somewhat mobile yet, but his
mom tells me that things don't look good in the near future
and Ryan will more than likely become permanently wheel
chair bound by this time next year. Currently doctors are
worried about his heart also.
Ryan LOVES to fish and wants to go Deep Sea Fishing!
Sometimes things just happen for a reason and shortly before
meeting Ryan, Benefit4Kids received an email from a Captain
Brian Cristy from Cope May, New Jersey offering up a deep
sea fishing trip! Plans are still being made as I type this,
but we will probably be sending Ryan and his family to New
Jersey sometime in mid May to fish for Stripers and Drum.
Then they will spend a day at Baures Preserve, which is a
private fishing pond not very far from Cape May, fishing for
a variety of fish!
Just as
they always do, this trip is coming together just great!
Ryan and his family will be flying out of Detroit on May
15th and headed for Philly, where they pick up there rental
car and make the drive to Ocean City, New Jersey. There they
will meet with Captain Brian Christy as he shows them his
Beach House in Ocean City where Ryan and his family will be
spending the week!
They will be Deep Sea Fishing for Drum and Stripers, along
with taking a trip to Baures Pond, which is a stock fishing
pond to enjoy another day of what Ryan LOVES to do....
FISH!!! Throughout the week, they will be sight seeing
around the Ocean City New Jersey area, visiting a local Zoo,
relaxing in the sun and sand, and reeling in trophy Drum,
Stripers, Striped Bass, Trout, etc!
A huge THANK YOU goes out to Captain Brian Christy who has
went above and beyond the call of duty by donating not only
his fishing trip and beach house, but also gathering up
donations and support from local businesses to take care of
the family while they are there! He is in the middle of
getting a website made up, but when he does I will post it
for everyone to see just what kind of people help us out and
believe in what we do! Thank you Brian for your Donation and
kindness to helping Ryan realize live his dream!!!
A few
final plans are left to be made but the trip is set and May
15th - 19th 2006 will find yet another Wish Kid living their
Dream because of our generous supporters like yourself!
Well
after a short plane delay due to weather this morning, Ryan
and his family are safely in Ocean City New Jersey getting
ready to live his dream of going Deep Sea Fishing!
A HUGE THANK YOU goes out to Captain Brian Christy for
helping us out so much with this trip! Captain Brian is
going to be taking Ryan and his mom out to sea tomorrow
morning fishing for Stripers and Drum, and Brian tells me
the big fish are in and hungry! Ryan will also be fishing at
Bauer’s Pond, a locally owned stocked fishing pond this
week, thanks to Joe Bauer. The family will also be taking in
the sights of the NJ coast, while staying in Captain Brian's
Beach house all weekend and also visiting a local zoo and
aquarium!
Late
last night the phone rings and on the other end is a very
happy and tired Captain Brain Christy of FreeSpool Fishing
Charters. Captain Brian was finally on his way home after
dropping Ryan and his mom off at the beach house after a fun
filled, and VERY SUCCESSFUL day in the Delaware Bay Deep Sea
Fishing! Brian said everything was a complete success and
some of the biggest fish he's seen come into a boat in a
long time were landed yesterday after Ryan fought them till
they gave up! Stripers ranged from 26 - 32 Pounds and Ryan
had a smile on his face the entire time!!! The action never
stopped and numerous fish were caught.
The
family was going to travel to a local zoo today, sight see
around Ocean City New Jersey and enjoy the day together,
then tomorrow they are off fishing again either back onto
Captain Brian’s boat as a surprise to try their luck at
Flounder fishing, or over to Bauer’s Pond, which is a local
stocked pond with all kinds of fish for Ryan to catch all
day long!
Ryan and his family had a great time and couldn't stop
thanking us for everything we did. This trip wouldn't have
been possible without the help of Captain Brian Christy of
Free Spool SportFishing! He is the one who deserves
all the credit for making Ryan's dream come true by taking
Ryan and his family fishing, allowing them to stay at his
beach house, taking time out of his day to gather community
support in the Cape May NJ area by gathering gift
certificates from local restaurants so the family could eat
free, etc. It is because of guys like Captain Brian, and all
of you that support us 100%, we are able to put the smiles
on the faces of these kids such as you see on Ryan's face
below!
On a
sad note, Ryan is going through a real rough time right now,
as he does each summer from what I understand. Doctors can't
figure it out and Ryan gets real sick to his stomach, can't
hold any food down, and gets very dehydrated. Ryan has been
in and out of the hospital since he got back from NJ and
could really use everyone's prayers right now. He also faces
a risky surgery soon to allow him to sit upright which is
needed to reduce stress and trouble with his heart! Please
keep Ryan in your prayers!